Robin - Practice Manager
Jenn, our Parent Support Advocate, lives in Idaho with her family, including this precious little one (right). Jenn has been there, done that, and has tremendous wisdom from experience to share with you. She understands what you're going through. Jenn can help get your footing and figure out how to deal with things like meds and herbal tinctures.
Our practice model and staff reflect the many backgrounds and places our patients come from.
Robin, our practice manager, is in New York. She and Amy have worked together a long time. Robin is incredibly capable and committed to making our practice work for everyone. We are grateful and fortunate to have Robin looking out for us.
Allison handles our IVIg requests. She is the communication conduit between the office, the infusion companies, and families. Allison lives in Santa Cruz and is attending Five Branches Institute for acupuncture and Chinese medicine. She is also a behavioral therapist and loves nothing more than to support families, which she does very well..
Christy is a Registered Nurse in Henderson, Nevada and the newest member of our admin support team. Christy is also the mom of this sweet girl, who today is happy and well. Christy has a wealth of clinical expertise and has walked this journey before you as a mom. She will help you with lab results, medication questions, and extra support in those trying moments, as well as helping with email questions and more.
Amy is a Nurse Practitioner specializing in Functional Medicine at Integrative Medical Institute of Orange County, in southern California. She is a renowned pioneer in the PANDAS front who limits her work exclusively to PANS/PANDAS cases, and takes a holistic approach to medicine with experience as a clinical nutritionist. She is also the mother of an amazing child with PANDAS and a dedicated PANDAS awareness advocate.
As a PANDAS parent, Amy understands what it’s like to have your child just slip away one day and have no idea why, to go from doctor to doctor to doctor without answers, to live in a dark place with your sick child, and to lose everything to PANDAS. Even after all of that, her son, now 22, is a senior in college with a full merit scholarship and a great life ahead of him. She believes that potentially each and every child can heal from PANDAS/PANS with the right information and a huge integrative toolkit.
Amy believes that every aspect of her personal and professional background has led her to this most clinically complex, professionally challenging and humbling work–that of supporting children with PANDAS/PANS and their families, as well as those with Lyme-based infections and other immune illness. She puts everything she has into each patient’s process and is thoroughly committed to seeing an end to the pathetic gap in the diagnosis and proper medical care of children with PANDAS and their families.
Amy serves on the PANDASNetwork.org Board of Directors and was the lead organizer of the West Coast PANDAS/PANS Parent Symposiums in 2012 and 2014. She has spoken at a number of conferences and trainings around the country and abroad. Like many providers that see children with PANDAS/PANS, Amy works with patients from around the world.
Having been both the mother of a child with a long-lasting and oftentimes severe case of PANDAS and a provider since before much was known about the illness, Amy is comfortable interacting with the familial breakdown and personal isolation that stems from it. She takes extra time to address the mental and emotional wellbeing of not only her patients but those affected by them. She makes it clear that people do not have to explain their mental or emotional states to her, or worry that she will judge them or think they're crazy as many providers less equipped to deal with it often do. Amy knows she never would've personally made it through her own son's illness on an emotional level without the support of other parents just like her. She is honored to be able to give back to these families by helping their children get well.
Amy is a team player, often working in tandem with other PANDAS providers around the country and taking the time to reach out to and consult with non-PANS/PANDAS providers who want to learn more about it. She was the Medical Advisor and co-producer of the Emmy award winning PANDAS documentary My Kid Is Not Crazy, working with American film director and associate professor at University of Florida, Dept of Telecommunications, Tim Sorel.
Those who know Amy can see that she assumes a very high level of responsibility for more than just her direct patients. Although she does have patients in 20 states and seven countries, she takes time out of her incredibly busy life of caring for others to do just that. For instance, Amy reaches out to connect with other parents through social media and blogging. From time to time she travels to other practices to meet with and train other providers who are entering the realm of PANDAS. She frequently communicates and works with schools to help them provide the most appropriate services and accommodations to her patients who need them, and last year gave an in-depth training to over 200 school nurses on the east coast on how to identify and support students who may have PANDAS.
Amy has practiced functional and nutritional medicine since the early 1980′s and has studied with a number of pioneers in the field. She attended Syracuse University School of Nursing where she received her BSN in Maternal-Child Nursing, and all of her acute care and hospital experience is in pediatrics. While currently she is working with all ages of patients, Amy has a passion for working with children and teens. At the University of Minnesota, she was a Fellow in the World Health Organization’s renowned Adolescent Health Training Program Medical School, and in addition to being a Nurse Practitioner, has a Master’s Degree in Adolescent Health with a focus on Youth Development and Community Health. She loves educating patients and families and has extensive experience in community education and program development for families as well as vulnerable youth populations.
Amy is passionate about organizing to change public awareness and social policy so people live better lives on every front. She is on the Board of Directors of PANDASNetwork.org, a parent-based 501(c)(3) nonprofit organization dedicated to promoting PANDAS awareness, research, and advocacy.